Research Portfolio
My independent research focuses on four themes: (1) measuring structural ableism and quantifying its impacts on physical and mental health, (2) documenting and intervening on discrimination in health care settings, (3) developing an evidence base and advocating for health policy changes that advance health equity for disabled people, and (4) interrogating and addressing ableism within public health and healthcare metrics, workforce training, employment, and leadership.
Research Praxis and Theory of Change:
I bring my lived experience as a disabled, mad, and neurodivergent person to my scholarship and have written elsewhere about how my background and positionality shape my perspectives on ableism.
I believe that public health research and advocacy should be closely linked. Through my scholarship, I aim to advance health policy that: (a) shifts power and decision-making in healthcare to disabled people, (b) divests from the mental health industrial complex, psychiatric institutions, and the prison industrial complex, and (c) addresses the upstream social, political, and structural determinants of health that shape health across the life course.
I recognize that disability justice originates and lives in the community, and I believe that out-of-the-system advocacy, dreaming, and other work are crucial for the liberation of disabled people. As someone producing scholarship critical of the U.S. health system, I hold a tension between documenting harm in the current health system and focusing on alternatives. My personal view is that we need to invest far more in addressing the social and structural causes of poor health and chronic disease and in community-based alternatives to the mental health system. Additionally, many people live with health conditions that require advanced medical treatments and assistive technologies, which I do not think can realistically shift to community settings. Instead, I believe we need a well-funded, government-run health care system. As an independent researcher, I attempt to limit my engagement with academic research systems and critique them. I also recognize that some interaction is unavoidable because of funding structures. My intention with my engagement is to generate evidence that documents ableism and in doing so reduces harm within health systems.
While some may feel that writing yet another research paper or policy brief is a waste of time and resources, there is still limited research on the health effects of ableism. Moreover, I do think that research can contribute to evidence-based policy when it is targeted to the right policymakers, published in the right places, and accompanied by advocacy and media coverage. I work to not just choose projects based solely on my intellectual interests but also based on whether they address health policy challenges and if I think new evidence could move the needle. I recognize that I am just one researcher, but I believe that scientists can collectively build a body of evidence that influences health policy, even in the face of powerful political and financial interests.

Measuring Impact and Practicing Reflexivity:
I am just beginning my work as an independent researcher, as of 2025. I plan to write publicly, every few years, about what I've accomplished and the ways I have seen my scholarship contribute to policy and other types of change. Some metrics I will use to measure my impact include academic citations, media coverage, citations in organizational, policy, and legal documents, policies implemented relevant to my work (e.g., local, institutional, state, and federal), and feedback from collaborators and community stakeholders.
While I may get it wrong sometimes and occasionally cause harm through my research, much of the public health and healthcare literature is incredibly harmful to disabled people. I hope my intentional contributions help correct some of that, even when I make mistakes. By engaging with disability studies and disability justice scholarship in public health and healthcare contexts that often overlook this work, I seek to uplift these authors in fields where their ideas are too often ignored. I frequently revise or extend my own work as I am exposed to new knowledge, receive feedback, and continue to grow. As a human, I value feedback and continuing to learn and unlearn. I also believe that people (even those of us who share similar values and lived experiences) can hold significant differences in opinion and practice, and that is healthy.
I currently fund and sustain my independent research on structural ableism by providing data analysis and research writing services for a range of health science projects. I approach this work with different intentionalities than my research on structural ableism, as described on my research services page.
Publications on Structural Ableism & Health:
Lundberg DJ, Chen JA. Structural ableism in public health and healthcare: a definition and conceptual framework. The Lancet Regional Health - Americas. 2024;30:100650. doi:10.1016/j.lana.2023.100650.

Publications on Ableism in Public Health Metrics:
Lundberg DJ. Disability and Health State Utility Values: A Framework for Assessing Ableism and Equity. Value & Outcomes Spotlight. July/August 2023;9(4):32-35.
Lundberg DJ. Revisiting the Disability-Adjusted Life Year (DALY) as a Health Metric: Rigorous Science or Ableist Guesswork? Ableism & Healthcare Now. Preprint. SocArXiv. Published online July 31, 2025. doi: 10.31235/osf.io/nzk62_v1.
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