Dielle J. Lundberg
 

Hello! My name is Dielle.

Website Description:

I am a health researcher in training and a multi-media artist. This website provides information about me, my scholarship, and how to connect. It includes 6 main pages:

Use the links, or scroll down to learn more about me and my scholarship…

 
 

This image is a close-up photo of Dielle Lundberg — a white disabled transfeminine person with wavy hair

 
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About:

My name is Dielle J. Lundberg (she/her or ze/hir), and I am a health researcher in training and a multi-media artist. I examine disability, neurodivergence, structural ableism, and health equity in my scientific and artistic scholarship. Learn more about me.

Mission:

My personal and professional mission is to dismantle structural ableism in public health and healthcare and to "crip" health research, practice, and education from disabled, mad, and neurodivergent perspectives. I am also also interested in the ways that disabled people across communities are reimagining health systems and practices. As a disabled person in public health research, I view my personal role as meeting public health and health care stakeholders where they are at and inviting everyone on a journey to divest from ableism, reduce harm, and make progress towards equity. Learn more about my recent research and artistic projects and collaborations.

Research Approach:

I am a disabled, mad, and neurodivergent person. My perspectives on ableism are informed by my experiences with physical disability (Long Covid and chronic pain), as a psychiatrized person (bipolar disorder and PTSD), and as an autistic person with ADHD (adult diagnosis ADHD and adult discovery autist). I approach my scholarship from a perspective of lived experience and attempt to ground my research in theory emerging from disability studies and disability justice scholarship and advocacy. Some concepts that guide my research are:

  1. Disability is a construct that exists in relationship to ableism and capitalism

  2. Structural ableism is deeply intertwined with other systems of oppression

  3. Many public health and health care professionals fundamentally misunderstand how a lot of disabled people experience their bodies and minds

  4. A history of eugenics and institutionalization underlies public health and health care and continues to shape policies, institutions, health care practices, and measurement methods that steal autonomy from disabled people

  5. Institutional ableism pervades science, research, and academia in ways that systematically exclude disabled, deaf, chronically ill, neurodivergent, and mad people and harm everyone

Read more about my research areas and my research approach, where I expand on each of these concepts and cite some of the disability studies and disability justice scholars behind them.

 
Photo of Dielle Lundberg presenting her research in a classroom at the University of Washington School of Public Health

This image is a photo of Dielle Lundberg presenting her research on structural ableism as a determinant of health.

This image is a photo of Dielle Lundberg with her research advisor and collaborator, Dr. Jess Chen.

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Recent Publications:

Structural Ableism in Public Health and Healthcare: A Definition and Conceptual Framework in The Lancet Regional Health - Americas

Go to the full open-access article on the journal’s website, or visit our essay — “Structural Ableism in Public Health and Health Care: Suggestions for Health Researchers and Policymakers Engaging with Our Article” — on Medium that we published to accompany the article. This essay also consolidates content related to the article such as a written interview about the article for Intersectionalia, a recorded conversation about the article at Boston University School of Public Health, and a captioned article summary video.

Disability and Health State Utility Values: A Framework for Assessing Ableism and Equity in ISPOR Value & Outcomes Spotlight

Go to the full open-access article on the journal’s website. Visit the article information page for other dissemination materials such as a captioned video summary.

More Publications

Visit my publications page to find all of my recent research publications.

 
Photo of Dielle Lundberg giving a poster presentation at the 2023 AcademyHealth Annual Research Meeting in Seattle

This image is a photo of Dielle Lundberg as she stands with a walking stick while presenting her poster on pain treatment during the COVID-19 pandemic at the AcademyHealth 2023 Annual Research Meeting in Seattle

Photo of Dielle Lundberg at the Intersectionality Training Institute Summer Intensive in Philadelphia

This image is a photo of Dielle Lundberg as she stands next to a sign that reads “Welcome to the Intersectionality Training Institute” while attending the Intersectionality Training Institute Summer 2023 Intensive in Philadelphia

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Recent Personal Essays:

Mad at/in Public Health Education: An Essay Collection

In this collection of 10 essays published weekly starting on April 12, 2024, I explore issues of access in public health and health sciences education for mad, disabled, and/or neurodivergent students and ways to change praxis to improve experiences for everyone. Read more about the collection, or go to the essays.

a brief update on my journey as a disabled phd student

Read my essay published in March 2024 on the Medium platform about my decision to move on from my one and a half years as a PhD student in Seattle, at least for the time being.

A Call for an Immediate Humanitarian Ceasefire in Gaza (From a Public Health and Disability Advocacy Perspective)

Read my essay published in December 2023 on the Medium platform, or view the associated essay page on this website for related resources and readings.

Guiding Principles for Health Equity Research & Advocacy

Read my essay published in July 2023.

More Essays

Visit my essays page to find all of my recent essays.

 
Photo of Dielle Lundberg with artistic collaborators at the University of Washington

This image is a photo of Dielle Lundberg standing with her walking stick alongside two collaborators — in front of their interactive, multi-media sculpture — “You Can’t Pour from an Empty Cup”

Photo of Dielle Lundberg Standing in Front of the Aftermath Sculpture Made of Textiles

This image is a photo of Dielle Lundberg standing in front of the Aftermath Sculpture — a large, room-size textile sculpture made from secondhand clothing, wood, and technological elements that she collaborated on — at its exhibition during the ACCelerate Festival 2022 at the Smithsonian Museum of American History

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Recent Artistic Projects & Collaborations:

Aftermath: A Multi-Media Sculpture

Learn more about the project and access images and related links.

MFC Tie-Dye and Denim Upcycled Clothes, Bags & Accessories

Learn more about the project and access images and related links.

You Can’t Pour from an Empty: A Multi-Media Installation

Learn more about the project and access images and related links.

More Artistic Projects & Collaborations

Visit my art portfolio page to find all of my recent projects and collaborations.

 
Dielle Lundberg standing in front of a snail

This image is a photo of Dielle Lundberg as she stands at a garden with her walking sticks next to a snail sculpture.

Photo of Dielle Lundberg with fellow writers and friends at a writing retreat and community space in Berlin

This image is a photo of Dielle Lundberg in a park with two fellow writers and friends during participation in a writing retreat and community space for fiction writers

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Connect and Collaborate:

I am available to collaborate on or discuss health research, provide guidance on projects at the intersection of art and health, facilitate learning about ableism and accessibility, and offer perspective to institutions and organizations on interventions to address ableism.

Learn how to contact and connect with me.

 
 

This image is a photo of Dielle Lundberg as she stands with her walking sticks in front of the spring cherry blossoms in Seattle.

 
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Other Recent Coverage & Writing:

Go to a transcript for a presentation that I did in April 2024 for a working paper about structural ableism and health at the Population Association of America (PAA) Annual Meeting.

Go to a recorded interview that I did in February 2024 about structural ableism in health systems for the Public Health Conversation Starter Series at Boston University School of Public Health.

Go to a reflection piece that I wrote in February 2024 for Innovate@BU about my experiences with Make Fashion Clean (MFC) and thoughts 5 years after completing their Summer Accelerator.

Go to an op-ed that I co-authored in January 2023 in The Conversation about the under-counting of COVID-19 deaths during the pandemic in the United States.

Go to an essay that I co-authored from September 2022 for an event at Boston University School of Public Health about the public health effects of textile waste.

Go to an op-ed that I co-authored from August 2022 in The Conversation about the low vaccine booster uptake rates from a health equity lens.

Go to an interview that I did from April 2022 at Boston University School of Public Health about art, education, and research to tackle the environmental injustices of textile pollution.

 
 

This image is a photo of Dielle Lundberg as she stands in a parking lot wearing a vintage denim jacket that she has annotated with permanent marker with quotes from her creative writing. The phrase “I wrote it!” is prominent.